Member Spotlight | March

Kirsti Osborne, our March member spotlight, has been involved with the Junior Committee for over 2 years. She works as a Clinical Helpline Coordinator at the Alzheimer’s Association and loves doing what she can to help End Alzheimer’s Disease. See more on Kirsti below:

Where are you from?
Pickerington, Ohio
Profession/Current Position?
Clinical Helpline Coordinator at the Alzheimer’s Association
What compelled you to join the Junior Committee? 
I played for Blondes vs Brunettes for the last several seasons and wanted to become more involved.
In what capacity have you served as a member of the JC? 
Brunettes Captain for 2016 & 2017 season; BVB Marketing Committee; Blondes vs Brunettes Sponsorship Committee; Columbus Walk Mission Committee; Junior Committee Communications Committee; BVB Website Manager
What is your guilty pleasure (tv show, sweet treat, etc.)? 
Doritos. Everything about Doritos. Actually any chip that ends in “tos” (I just recently discovered the spicy sweet chili Doritos and my life was changed for the better)
Where is the best place you have traveled & why?
I went on a cruise last year and traveled to Grand Turk, La Romana, Bonaire, and Aruba. They were all beautiful places and were serene in their own ways. My favorite part was gliding through the ocean with the electric scooter and being able to swim with the fish and aqua life of Grand Turk. It was a breathtaking view!
Which event put on by the JC has been your favorite so far?
I am a little biased but I have to say Blondes vs Brunettes! This is my 4th season playing and my 2nd year as captain. Being able to take part in an event that raised upwards of $44,00 dollars for the Alzheimer’s Association last year alone is a huge honor! There are so many women that have never even touched a football and are joining the field to honor their loved ones, and that is a huge inspiration. And obviously, I love football so it is a win-win situation when I get to play a sport I love and raise awareness for a great cause.
Tell us why ending Alzheimer’s is important to you: 
The reason why I am fighting so hard to end Alzheimer’s is to honor all the clients and family members that I serve every day at the Alzheimer’s Association. They are the reason I am so passionate about tackling this disease. I truly enjoy connecting with each and every one of the caregivers, callers to the helpline, and of course the people with the diagnosis. They have all been dealt a hard hand to play and I know that although I don’t have a cure, I have the passion and drive to help them as much as I can and be there for them throughout the process.
Any last thoughts? 
I would just like to challenge everyone who reads this to get involved in the fight to end Alzheimer’s. It could be attending an event, attending a support group or education program, or simply volunteering with the association. Alzheimer’s disease is here to stay until we do something about it!

 

2017 BVB Co-Chairs: Behind the Scenes Dream Team

Kait & JenaPlanning for Blondes vs. Brunettes Columbus 2017 is well underway and the BVB Co-Chairs are kicking butt & taking names as they gear up for the Junior Committee’s signature fundraising event, which benefits that Alzheimer’s Association, Central Ohio Chapter.

The 2017 BVB Co-Chairs, Jena Callahan & Kaitlin Watterson began preparation for this event in November and have been tackling the challenges that come along with planning it left and right. They have high hopes that this season will be the best yet and look forward to getting it started with the BVB Kick-Off Party this Saturday at Classic Victory’s!


Learn more about Jena & Kaitlin in the Q&A below:

Where are you from?

Jena: The smallest town in Ohio, Columbus Grove – don’t worry, you’ve never heard of it and that’s okay 🙂 Kaitlin: Lebanon, Ohio

When/how did you become interested in Blondes vs. Brunettes?

Jena: My best friend Jenny played in NYC shortly after moving there. She had such a great experience and told me she had met so many new friends that she wouldn’t have otherwise had the chance to interact with. We looked it up and Columbus had a chapter! I had been wanting to add some sort of charity work into my resume, so I signed up, got involved and have never left! Kaitlin: I originally heard about the Junior Committee at a work event about two years ago. My grandma had recently been diagnosed with Alzheimer’s and so I was immediately interested in learning more. I showed up to my first meeting in April 2015 and Blondes vs. Brunettes planning for that season was in full swing. Between my dedication to the cause and the fact that I love sports, I was in right away. I joined team Brunette on the spot and haven’t looked back since!
Jena, this is your third season as BVB co-chair, how would you say things have changed from your first season?  Kaitlin, this will be your first season as BVB co-chair – what are you most excited about?
Jena: So many things have changed from my first season. My first year playing I was team brunette captain and the three years following, I have been co-chair. Goodness, we have grown so much as an organization, so many people now know what BVB is (not everyone, still plenty of opportunity for growth!). I also believe we have spent more time incorporating the “WHY?” of us playing. We have implemented more facts, tidbits and shocking statistics about the into practices, info given to the players and social media. The last couple years we have had legit jerseys, which just make the experience and the feel of things that much more real. We have raised over $15,000 more money! We have gained about 15 players. We have become more creative with fundraisers. We used to ONLY do happy hours, last year we added in a hip-hop dance fundraiser (which was huge!) and this year we have a few new things up our sleeve. Our committee has tripled in size and we are so grateful for every single one of them, their opinions, their efforts and their dedication to BVB and the cause! Kaitlin:  I am incredibly excited for the entire season. Blondes vs. Brunettes has become near and dear to my heart and I’m so looking forward to another amazing season to kick off. This year, it will be extra special to be one of the co-chairs bringing it all to fruition. Ultimately though, I think I’m most excited for that final whistle on game day. In that moment, I know I’ll be so proud of another season accomplished, all our hard work put towards an incredible event, a new camaraderie between this year’s players and coaches and (hopefully) a new fundraising record!

What is your favorite memory from last season?

Jena: Favorite memory…. Gosh there are a few! I would say a few of the lifelong friendships formed and really getting to know those people. Second, I would say the fact that we KILLED our goal by $9,000. In addition to that, I killed my own personal goal of $1,500 by $900! Third would be all the long nights spent out at the farm working on BVB with Sarah Arp and a bottle of red wine. We really got to know one another, got so much done, learned so much, and really worked so well as a team! Kaitlin:  Scoring a touchdown for the Brunettes on game day is definitely up there. But I also really cherish my memories of the draft party. It was so cool to come together, not as Blondes vs. Brunettes, but as women on a mission and celebrate our season and money raised together before the ultimate showdown the next day.

What are you most proud of in regards to BVB?

Jena: Are you kidding me? We raised almost $45,000 last year and squashed our goal! The players, outreach and fans did that with a lot of help from the BVB leadership team! I’m also super proud of our committees. We have strong leads both last year and this year who are always willing to help in anyway. I’m looking forward to seeing what they can accomplish this year! Kaitlin: I’m most proud of the people involved. We have a variety of individuals in many age ranges with different backgrounds. Some are new to the organization, others are veterans. Many may be part of BvB for very different reasons. But at the end of the day, we come together dedicated to raising thousands and thousands of dollars for the same cause, all with the hope that one day we can end Alzheimer’s disease. I’m so proud that we have a group of individuals willing to give of their time, money and heart to make BvB not only possible and successful, but also an incredible event to be part of.

What are your hopes for BVB 2017?

Jena: My hopes for 2017 is that everyone, veterans, rookies and coaches come out of the season loving BVB as much as I do. I live, eat, sleep and breath this. I want everyone to want to participate and bring their friends and share their amazing experiences. I also hope that each participant can walk away from the season with an even greater knowledge base than when they started about Alzheimer’s. My hope is that they want to learn more, they continue coming to Junior Committee events and really become passionate for the cause. Kaitlin:  My goal is for us to raise more money than last year and increase our presence and reach in Central Ohio. My hope is that after this season, even more people will know who we are and what we’re fighting for. I also want each person involved to have a great experience being part of Blondes vs. Brunettes Columbus.

What advice would you give to a rookie joining BVB for their first season?

Jena: Give it your all! Dive in, don’t be afraid of these girls – they are all amazing, driven, caring individuals out there for the same reason you are. Whether you’re more into it for the sport aspect, the community or the cause, someone shares your thoughts. Get to know everyone as much as possible. DO NOT segregate the opposing team – they are great too! They just have a different hair color. Come to as many practices and events as you can. Don’t be afraid to put yourself out there and introduce yourself. The first step in making a friend is just a smile and hello! Kaitlin:  Jump in! Join a committee, come to events, hang out with the teams after practice or training camp, suggest new fundraising ideas and so on. For me, BvB started as a really cool group to be involved in but has turned into an incredible family of friends and a fulfilling way to give back. I hope our rookies are eager to get onboard and see where this year takes them!

Any last thoughts you want to share?

Jena: BVB is an amazing event. So many chapters have grown exponentially across the country. We will get there, we will be BVB Dallas one year when we have 50 girls to a team and raise $500,000! Our goals are set for the future. Join BVB. Meet new friends, learn about new opportunities. Do something you’ve never done before. I don’t believe there is one person out there that would tell you “doing something you’ve never done before is a bad idea” when it comes to a charity, a cause and a passionate group of individuals. Kaitlin:  First of all, I want to thank Jena for being a wonderful fellow co-chair. I couldn’t do BvB 2017 without her. Secondly, I hope to see everyone at our kick-off on Saturday, January 21. Here’s to another amazing season!

Relieving Guilt Through Action

To continue in the theme of Alzheimer’s and Brain Awareness Month, one of our members, Annie Hutter, shares an incredible, honest look into the effects the disease has had on her and her family on a very personal level as well as how getting involved in the fight to end Alzheimer’s with the Junior Committee has given her a new sense of hope.

Annie Hutter (2)About Annie: Annie is a Senior Financial analyst for DHL Supply Chain. Her dad started showing signs of Alzheimer’s at age 55 (about 10 years ago) and was diagnosed a few years later. He still lives at home with her mom in Chagrin Fall, Ohio (a suburb of Cleveland). Annie is a very active member of the Junior Committee. She traveled to Washington, DC in April for the Memory Forum to participate in the battle for increased Alzheimer’s funding and research. She is also tackling Alzheimer’s through Blondes vs. Brunettes.


I am 30 years old and live in Columbus with my husband and our cat.  Life for the most part is fantastic, full of many blessings. But for the past 10 years there has been a black cloud of sorrow over me as I’ve watched my wise, productive, and full of life father be slowly stripped of himself due to Alzheimer’s disease. Watching the person you once turned to for all your advice and guidance become unable to complete a sentence or make a sandwich is a tragedy I do not wish upon anyone. The pain I feel for my parents is something that is always present. My dad’s health is declining every day, and his dependence on my mom, his caregiver, is increasing every day.

In addition to the amount of pain that comes from watching this happen to my parents, there is an extreme amount of guilt. Guilt that before we knew of my dad’s disease, I was impatient with his struggling memory and at times still am; guilt that there is nothing I can do to delay, treat, or cure his disease; guilt that my mom (who lives in Cleveland) is largely taking on my dad’s care by herself while I am in Columbus living each day with an independence she hasn’t known for the last 5 years; guilt that I’m not spending enough time with my dad while he can still communicate. The list goes on. I tried to rid myself of this guilt by making trips up to Cleveland as often as possible, but with a full time job, a house, and responsibilities in Columbus, there is never enough time.

It wasn’t until discovering the Junior Committee of the Alzheimer’s Association that I was able to curb some of this guilt through action. Upon joining the committee in the Fall of 2015, I was armed with knowledge, fundraising opportunities, friends who can relate firsthand to my experience, and advocacy opportunities. My husband and I traveled to Washington D.C. in early April to advocate for more federal funding and the support of Alzheimer’s related bills. This summer I am playing in a flag football game, “Blondes vs. Brunettes” to raise money for the association. I am also on the Gala committee for Paint the Night Purple, taking place this fall. For the first time in the past 10 years, I don’t feel helpless anymore. And I don’t feel hopeless. Even though I am not a researcher, doctor, or government official; the Junior Committee has empowered me to get involved and fight.  Fight for more money, more resources, and more attention.  Getting involved with the fight has opened my eyes to see how many others are fighting for the same thing. I am confident that our efforts will bring an end to this disease in my lifetime.

Is all my guilt gone? Of course it’s not; it never will be. But there is less because I am taking action rather than just watching from the sidelines. And while none of this action will directly help my dad, my hope is that it helps prevent future families from the tragedy of Alzheimer’s disease.  And in all of this, I know I am honoring my dad, who lived his first 55 years of life building, fixing, helping, and creating; and who never let a day go by with an attitude of indifference.

IMG_0037

Recapping this year’s Alzheimer’s Advocacy Forum

Earlier this month, the Junior Committee sent a group to DC to paint Capitol Hill purple for the Alzheimer’s Advocacy Forum. Our Education and Advocacy Chair, Hayley Jones, recaps the experience here!

ALZ Headshot 2

About Hayley: Hayley Jones has been an active member of the Junior Committee since February 2013 and is currently serving her second term as the Education and Advocacy Chair.  She is a 2011 graduate from The Ohio State University where she received her BA in Strategic Communication. In her free time, she enjoys spending time with friends and family and planning her upcoming wedding! Hayley’s mom passed away from Alzheimer’s in November 2013 and she is passionate about ending Alzheimer’s and living in a world where there are survivors.

 

 


 

In 2013, I was asked to attend the annual Alzheimer’s Advocacy Forum in Washington D.C. by Ty Pier, the Advocacy Board member on the Junior Committee. At the time, I was excited for the opportunity, but I didn’t think my attendance would make a difference. How could my story change the way our leaders fund Alzheimer’s research? Is Alzheimer’s really THAT big of a deal?

Alzheimer’s is THE most expensive disease in America. It IS that big of a deal.

During my first trip to the forum, we asked Congress to pass the Alzheimer’s Accountability Act. This would require Congress to work with the National Institute of Health to come up with a realistic budget for research. Up until this point, Congress had been creating budgets without any knowledge of how much money was actually needed. I was shocked. You’re telling me that Congress controls the money we need for a cure, but they haven’t asked anyone how much a cure would cost? That will never work!

A few months after the forum, we learned that the Alzheimer’s Accountability Act passed through the House and Senate and President Obama had signed it. WE DID THAT. I DID THAT. I had a part in making Alzheimer’s history. My story, along with the stories of 900 people from across the country, made a difference.

Fast forward to 2016: I just got back from attending my third forum! This year, I was given the great honor of representing the entire state of Ohio during the opening night roll call ceremony.

hayley

This year, we had ten members of the Junior Committee attend the forum, which is more than we’ve ever had attend before! Each of us earned scholarships from the National Association by attending additional meetings with our members of Congress here in Ohio. While in our congressional meetings, we had three specific “asks” for our leaders.

Our first ask was for an additional $400 million for research during fiscal year 2017. $400 million will bring us closer to the total of $2 billion we need each year to find a cure by 2025. As of today, we receive just under $1 billion.

Let’s go over a few facts and figures about current research and dollars:

  1. Alzheimer’s disease is THE most expensive disease in America.
  2. Alzheimer’s disease is the 6th leading cause of death but the only one that doesn’t have a prevention, cure, or way to slow it down.
  3. In 2016, Alzheimer’s and other dementias will cost the nation $236 billion.
  4. $160 Billion in Medicare and Medicaid dollars are spent on those living with Alzheimer’s.
  5. Only $991 million are spent on Alzheimer’s research.

Our second ask was for all of our leaders to sign onto the HOPE for Alzheimer’s Act. The HOPE Act would ensure doctors provide a care plan for any new diagnoses of Alzheimer’s. Care planning is crucial to improving the outcome for the individual and their family. The HOPE for Alzheimer’s Act would also ensure the dementia diagnosis and the care planning are documented in the medical record.

A few facts and figures about the HOPE to Alzheimer’s Act:

  1. Will reduce Medicare costs associated with caring for people with Alzheimer’s disease.
  2. Builds upon existing Medicare coverage of a diagnosis and would provide the time doctors say they need to talk to their patients about an Alzheimer’s diagnosis.
  3. Over a 10 year period (2016-2025), a care planning benefit would reduce federal spending by a total of $692 million.

The last ask was for a new bill referred to as PCHETA (Palliative Care and Hospice Education and Training Act). Palliative and hospice care, with a focus on easing symptoms and reducing pain and stress, and increasing comfort, can improve both the quality of care and life for those with advanced dementia.

A few facts and figures about PCHETA and Alzheimer’s disease:

  1. Up to half of dementia patients have documented pain in the last weeks of life
  2. Dementia patients who receive palliative care at the end of life are 15 times less likely to die in a hospital.
  3. Families of individuals with dementia who are enrolled in hospice have a greater satisfaction with patient care.

Our trip to the 2016 Alzheimer’s Advocacy Forum was an absolute success. We met with staff for Congressman Stivers, Congressman Tiberri and Congressswoman Beatty and they were all very receptive to us. Congressman Stivers and Congresswoman Beatty have already signed onto the HOPE for Alzheimer’s Act and the PCHETA Bill.

On top of learning more about Alzheimer’s and advocacy while at the forum, we had FUN! We got to share our documentary, Elephants in the Room with other young professionals from across the country, we shook hands with Senator Rob Portman, and we walked all over our great Capitol sharing our passion to End Alzheimer’s!

For additional information about this years “asks”, please read more here.

If you’d like to join us in DC next year, please contact Hayley Jones (Hayley.Alzcbusjc@gmail.com).